ENACCT and CCPH Host Four Free Webinars Showcasing the Communities as Partners in Cancer Clinical Trials' Implementation Partners
Communities as Partners in Cancer Clinical Trials†
Implementation Partners Showcase
In December 2008, four "Implementation Partners" were awarded one year of seed grant funding, training and technical assistance to begin implementing specific recommendations from the Communities as Partners† final report. As the funding period concludes, we are pleased to highlight the partners' successes, challenges and lessons learned through a series of four free webinars. All webinars will be moderated by Margo Michaels, Executive Director of the Education Network to Advance Cancer Clinical Trials and Sarena D. Seifer, Executive Director of Community-Campus Partnerships for Health.
JOIN US FOR FOUR FREE WEBINARS in DECEMBER & JANUARY
December 7th, 3:30pm - 5pm ET
Cancer Center Partnering Efforts with African American and Latino Organizations to Enhance Access to Cancer Clinical Trials
Vanderbilt Ingram Cancer Center, in collaboration with Meharry Medical College, the Nashville Latino Health Coalition, the Nashville Health Disparities Coalition, the Nashville Branch NAACP Health Committee, the Cervical Cancer Coalition and Tennessee State University, conducted a series of town hall meetings to expand community awareness and foster participation of underrepresented groups in cancer clinical research. Through these meetings the partners identified key issues for system change as well as community members interested in serving in on advisory boards and committees.
This Webinar will focus on implementation efforts based on the report's Recommendation VI - Enhance Local Community Support for Cancer Research
After attending this session, participants will be able to:
• Identify the goals of the project
• Describe the process and preliminary outcomes of town hall meetings with African American and Latino groups
• Describe the anticipated roles for community member engagement in advisory boards and committees
Project Speakers: Debbie Wujcik, Director of Clinical Trials, Vanderbilt/Meharry
Tene Franklin, Chair, Nashville Branch NAACP Health Committee
CLICK HERE TO STREAM A RECORDING OF THIS PRESENTATION
CLICK HERE TO DOWNLOAD A RECORDING OF THIS PRESENTATION
CLICK HERE TO VIEW ONLY THE SLIDES
December 10th, 3:30pm - 5pm ET
Patient Leadership in a Local Cancer Clinical Trial Public Awareness Campaign: How a Patient Advisory Board is Expanding Access to a Community Oncology Program
Grand Rapids Clinical Oncology Program's newly formed Patient Advisory Board (PAB) - comprised of cancer survivors and volunteers with experience in clinical trials implemented an innovative cancer clinical trial public awareness campaign for the medical community, allied health professionals and the general public in Western Michigan.
This Webinar will focus on implementation efforts based on the report's Recommendation V Improve Participant Recruitment, Accrual and Retention
After attending this session, participants will be able to:
• Identify goals of the project
• Describe key activities of the PAB, including training, media engagement, and working with health care professionals
• Discuss the collaborative relationship the PAB is forming with the Community Clinical Oncology Program leadership
Project Speakers: Connie Szczepanek, Administrative Director
Patrick Gavin and Marty Smith, Co-Chairs, Patient Advisory Board for Clinical Research
Grand Rapids Clinical Oncology Program
CLICK HERE TO STREAM A RECORDING OF THIS PRESENTATION**
CLICK HERE TO DOWLOAD A RECORDING OF THIS PRESENTATION**
CLICK HERE TO VIEW ONLY THE SLIDES
** Due to technical difficulties the recordings for this session are of the slide presentation only, a separate audio file will be coming soon.
January 7th, 3:30pm - 5pm ET
The Potential for Community Advisory Boards in Cancer Clinical Trials
UNC Carolina Community Network, in partnership with the NC Comprehensive Cancer Program, has developed a state-wide community advisory board (CAB) to provide guidance to cancer researchers at the state's three NCI-designated cancer centers. Trained in research ethics and the principles of the cancer clinical research process, CAB members will review Phase III clinical trial protocols for community relevance and feasibility.
This Webinar will focus on implementation efforts based on the report's Recommendation IV: Ensure Community Perspectives in Protocol Development, Trial Design and Implementation
After attending this session, participants will be able to:
• Review roles and existing models of CABs in public health initiatives and their potential for success in cancer clinical research
• Identify goals of the project
• Describe the steps needed to fully operationalize a state-wide CAB model
Project Speakers: Giselle Corbie-Smith Associate Professor, UNC School of Medicine
Melissa Green, Project Coordinator, Carolina-Shaw Partnership for the Elimination of Health Disparities
Walter Shepherd, Program Director, North Carolina Comprehensive Cancer Center
CLICK HERE TO VIEW ONLY THE SLIDES
Audio recordings coming soon!
January 11th, 3:30pm - 5pm ET
Expanding Access to Cancer Clinical Trials through Improvements in the Informed Consent Process
Columbia St. Mary's Health System sought to make improvements in their informed consent process for cancer clinical trials. By implementing staff cultural competency training and modifying consent forms and processes, the program is better addressing the needs of non-English speaking and low-literacy patients.
This Webinar will focus on implementation efforts based on the report's Recommendation Category III - Improve Informed Consent Process
After attending this session, participants will be able to:
• Identify common challenges experienced during the consent process for patients with Limited English Proficiency (LEP) and ways they are being successfully addressed
• Discuss Culturally and Linguistically Appropriate Service (CLAS) Standards, and how they apply to cancer clinical trials
• Identify goals of the project
• Discuss implementation activities to enhance trial access among patients with LEP or limited literacy, including training staff, revising consent forms and using translators and interpreters
Project Speaker: Diana Lenhardt, Manager of Clinical Trials Operations, Columbia St Mary's
Guest Speaker: Linda Bulone, Clinical Trials Manager, Queens Hospital Cancer Center
CLICK HERE TO STREAM A RECORDING OF THIS PRESENTATION**
CLICK HERE TO DOWLOAD A RECORDING OF THIS PRESENTATION**
CLICK HERE TO VIEW ONLY THE SLIDES
** Due to technical difficulties the recordings for this session are of the slide presentation only, a separate audio file will be coming soon.
Please click here for a PDF version of this document
*After you have registered for a session, you will receive a confirmation e-mail with instructions for joining the session
†Communities as Partners in Cancer Clinical Trials: Changing Research, Practice and Policy, funded by the Agency for Healthcare Research and Quality and the National Cancer Institute, developed specific recommendations to improve recruitment and retention to multi-site, therapeutic phase III cancer clinical trials through the use of community-based participatory research principles and approaches. The Communities as Partners final report, developed through two stakeholder meetings and a national vetting process, advanced more than 50 recommendations to engage communities in specific and meaningful ways throughout the clinical research process in order to: a) reduce barriers to diverse participation in cancer clinical trials and b) build partnerships that utilize innovative approaches to increase minority recruitment and retention in Phase III cancer clinical trials. See www.communitiesaspartners.org to learn more.