Communities as Partners in Cancer Clinical Trials:
Changing Research Practice and Policy
[October 2008 Full report]
Communities as Partners includes more than 50 recommendations, developed by a diverse group of stakeholders, for improving accrual rates and addressing persistent disparities in multi-site phase III cancer clinical trials. Communities as Partners is the first report to detail how and why the cancer clinical trial process should involve communities affected by cancer- from trial design to implementation to dissemination of results - and how this involvement can improve trial design, recruitment and retention. In addition to the recommendations, the full report includes an extensive appendix, with a variety of resources to assist in the implementation of the recommendations.
Communities as Partners in Cancer Clinical Trials:
Changing Research Practice and Policy
[October 2008 - Report Summary]
The report summary is a half-size booklet, containing the Communities as Partners recommendations.
Involving Communities as Partners in Cancer Clinical Trials:
Background Paper for the Conference Series
[August 2007]
The Background Paper was required reading for the participants of the Communities as Partners stakeholder meetings, held in College Park, MD, September 2007 and March 2008. It is composed of three parts:
- A Primer on Community Based Participatory Research (CBPR and the U.S. cancer clinical trial enterprise
- An innovative model for integrating CBPR principles into each phase of cancer clinical trial design and implementation
- Commentary on the model for NCI staff, patient advocates, oncologists, clinical trial researchers, minority health experts, and others