 A
non-profit organization founded in 2004, ENACCT's
mission is to identify, implement and validate
innovative community centered approaches to
cancer clinical trials education.
Our goals include the following
- To influence the inclusion of
appropriate cancer clinical trial education
as a top national priority
- To become a national leader in
the development and delivery of the highest
quality community-focused clinical trials education
programs for health care providers, patients,
and the public
- To use our programs to critically
evaluate cancer clinical trials education approaches
to determine the most effective approaches
- To help stimulate a research agenda
on promising areas of inquiry
- To offer high quality, fee-based
services that enhance the capacity of organizations
conducting cancer clinical trials outreach,
education and recruitment
Values that Guide Our Work
We believe that in order for cancer
clinical trials education to be effective,
it must have the following features:
- A focus on broad community education
beyond a campaign or singular educational “product” (i.e.
brochure, video or website)
- A primary emphasis on access to
information rather than recruitment to any
specific trial
- Recognition of the need for different
educational approaches for different audiences,
timing to reach that audience, and understanding
how to motivate that audience
- A focus on community literacy
about medical research
- A focus on the needs of patients
and potential patients
- A focus on optimal benefit to
patients and potential patients rather than
the cancer “research system” itself
- An ultimate focus on community
empowerment—individual involvement, organizational
development, and change in community cancer
care
- Enhancing individual access
to information; individuals are only able
to make appropriate and informed decisions
about their health when they can obtain
process and understand the connection between
medical research, treatment options and
available health care
- Strengthening locally driven,
locally “owned” programs and grassroots
efforts
- Encouraging behavior change
of both patients & health care providers
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