What's New at the Cross Cultural Collaborative |
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During the first quarter of 2007, the Collaborative and its Health Navigators delivered cancer clinical trials education to their communities by mediating discussions and delivering presentations at all local contact levels. They met with community members in churches, special event gatherings, health fairs and local leadership meetings. During February 2007, they helped to train six new Health Navigators/Liaisons, and throughout the year, our Tacoma site has promoted ENACCT’S upcoming Health Care Provider ‘Training of Trainers’ program to local oncology providers. All in all, they conducted 4 workshops with 47 community leaders in the Tacoma, Washington area.
The Collaborative's policy and advisory committee was formed with medical partners from the cancer care community in order to work on policy and advocacy issues impacting cancer clinical trials in minority communities. The committee examines issues within institutions, private insurance, state Medicaid coverage and reimbursement policies.
They have learned that Northwest CCOP (its local Cancer Community Oncology Program) has asked its IRB to consider utilizing “the short form” instead of a longer consent form typically used.
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| The US Food and Drug Administration recommends that investigators use the “short form” written consent document instead of the complete IRB-approved translation form when they meet with potential study participants who do not speak English. The “short form” is
written in a language the person understands and should be used to document
that the elements of informed consent were presented orally. When the
short form is used, investigators still must conduct an oral discussion
of the research that covers the required elements of consent. |
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The short form is permitted by the US Office of Human Research Protections and may reduce one important barrier for patients enrolling in cancer clinical trials.
Based on a recent article published in the Journal of Thoracic Oncology (Quinn, et al., 2007) the Northwest CCOP is working on writing an introductory letter to cancer patients informing them about cancer clinical trials and their treatment options as soon as an initial appointment is made.
| The Cross Cultural Collaborative Navigators in Pierce County,
WA |
| Name |
Organization/services |
Languages Other than English |
| Dr. Soon Han |
Korean Women Association/ Korean cancer support group |
Korean |
| Claudia Pena |
Community Health Care Clinic – Outreach worker |
Spanish |
| Betty Newborn |
African American Cancer Support Group |
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| Bona Khim |
Indochinese Cultural & Services Center/Vietnamese |
Vietnamese & Cambodian |
| Lynn Abbeglin |
Lesbian, Gay, Bisexual, Transgender (LGBTQ) |
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| Autry Bell |
People of Color Against AIDS Network – African American |
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Cross Cultural Collaborative Navigators (Jan. 2007)
Top
row: Allison Cox, Alla Alkanchina, Sam Yeun & Winifred
Cleve. 2nd from Top: Lynn Abbeglen, Serenity Wise,
Tutrecia Giles, Miwha Schmitschek, & Bona Khim. 3rd
from Top: Dr. Soon Han, Claudia Pena and ENACCT
Executive Director, Margo Michaels. Bottom: Betty
Mewborn, Chamreoun You & Rondha Douglas.
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